Monday, April 11, 2016

20 Months Old!

Abby hasn't been weighed or measured in a couple of weeks, so I can't actually do my usual report. This is awesome because it means she hasn't had very many appointments outside of therapy recently. Woohoo! 

She is learning new signs all the time, while we learn to navigate the early-onset of the terrible twos. It's been a doozy. I'd hoped that maybe we'd just get to, you know, skip it. No such luck, lol. Oh well.  We've been trying to combat the whining and tantruming by getting out and enjoying the nice weather. There are so many neat things to do around here and I hope that Abby is enjoying everything as much as I am!

We found out recently that Abby is going to need tubes placed in her ears. Despite not having many ear infections, she's had fluid built up in her ears for months now and it's got to go. Because she can't be sedated here in San Antonio, we'll be treking out to Houston at the end of the month to have TCH get everything rolling for the procedure. We've gotten to avoid anything surgical for so long now that I'm really not looking forward to it, but apparently she is probably hearing things as though she were underwater, so I know it's for the best.

Tube-feeds are going great! She is only getting Real Food Blends and water through the tube during the day and a little formula and water overnight. Eventually we're hoping to get rid of the overnight feed and have her receive all of her nutrition during the day, but I think we're still a few months out from that kind of volume tolerance.

Abby's gait-trainer arrived last month and she's been doing her little ski-pole scootchy-scootch all over the house. She is not at all interested in using her feet reciprocally to walk right now, but hopefully when her SMOs finally come in, she'll gain some confidence in her standing and walking! 

I think that's all I have to report right now!  We had a really nice, low-key Easter, and spent the end of last month celebrating Jameson's birthday. I'm looking forward to some more beautiful days and new experiences before the heat starts ramping up!


  1. I love your updates and I think of you often.

  2. SO great to see her doing so well!

  3. I love seeing your little bird's happy smiling face!! She is so cute and full of joy!

  4. Beautiful little lady!!! Heart that smile.