Thursday, August 29, 2019

1st Day of School and Medical Updates


Abby started her second year of school this week! She did so well last year, that we decided to opt for the full-day program this year. We aren’t sure whether or not she can handle a full day of class, but we know that we are in the most wonderful, nurturing school right now, and if we’re going to try to push her, this is the place to do it. She is in the best hands and we are so hopeful for another amazing year.


We have also had a couple of medical follow-ups this month. Her ophthalmology follow-up was a couple of weeks ago, and a little inconclusive. Her optic nerve swelling has not gone down, and may actually even be worse, but the ophthalmologist thought the increase in swelling may be consistent with the amount of time between his original diagnosis and the actual date of the shunt revision. Apparently it can take quite a while for swelling to resolve, and he wants to see her again in a couple of months.

Today’s neurosurgery follow-up was equally lacking in concrete information. Basically, they did everything they could for the shunt and now we just have to wait and see if her skull needs to be expanded. They want to do another MRI around the first of the year, and we’ll go from there. I don’t love the watch and wait routine, but we’ll do what we have to do!


Saturday, August 10, 2019

Aberdeen’s 5th Birthday!



I don’t know if everyone is as taken aback by this as I am, but there’s a part of me that truly can’t believe that our amazing Aberdeen Wren, my baby bird, is FIVE years old today. I won’t say that the time has flown by. It hasn’t. Some periods of her life have actually gone by agonizingly slowly, but she is here, FIVE, and that feels astonishing to me.

Abby is a few weeks out from her surgery now and she’s doing fabulously. She was back to her happy self by the next day, and her incision is healing really well. We have her ophthalmology follow-up next week, and will hopefully have a clear idea of whether the problem is truly fixed now.

We’re so thankful that she got to have a fun and joyful day today. Fingers crossed for good news this week!