Today, Aberdeen was admitted to the pulmonary unit at CCHMC to try to get her accustomed to using CPAP (continuous positive airway pressure). CPAP helps keep the airway open so as to combat Abby's tendency to obstruct her airway while asleep. If she can tolerate the mask, and actually leave it in place, it may allow us to avoid a surgical intervention. Fingers crossed.
She'll be inpatient for a couple of days, and then we'll hopefully be able to go home. Toes crossed.
Hi, I'm an adult with NS and CPAP. It takes some getting used to, hopefully the pulmonary unit people are pros and can help you with tips and tricks to acclimate her. It will make a huge difference if she can sleep with it on--amazing what staying at good oxygen saturation levels all night can do for a person! It feels so nice to feel cool, clean air coming in that when I wake up I'm always reluctant to take mine off. Hopefully she will be a little duckling (one who takes to CPAP like a duck takes to water) and reap all the benefits. Good luck!
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