Abby is quite the roly-poly these days, and is in the process of figuring out that she can use her rolling to get to things she wants, which is amazing. She's on a bit of a sitting strike right now, but last week proved that she can manage short bursts completely unassisted. I imagine sitting on her own is right around the corner.
She currently loves mimicking our silly faces, playing peek-a-boo, and entertaining people with her stories. She does not enjoy being measured at her doctors appointments or sitting, at the moment. She weighs 17lbs, 9oz and is 26.5in long!
Abby had her ENT appointment this week to further discuss options for treating her sleep apnea. In addition to trying CPAP inpatient, ENT, pulmonology, GI, cardiology, and the kitchen sink are going to collaborate during a sedated procedure to try to track down an identifiable problem. If they can find something (like monstrous tonsils), they will go ahead and fix it right then. If not, then we will keep discussing options. It doesn't sound as though it's going to be a simple process. We've also been concerned about Abby's breathing for the last couple of days, so I took her to cardiology this morning, fully expecting for her to be admitted. They decided that her work of breathing was most likely due to swelling from being scoped at her ENT appt, so we're going to try some steroid nose drops and hope that it clears up. We were all VERY happy not to be admitted today!
Last, but not least: We had a blast on the 4th of July, finally visiting the Cincinnati Zoo and watching fireworks from our back porch.
You are 11 months old today, and I can't express how grateful I am to be home with you this evening. Your last month or so of medical appointments have held a lot of unexpected news: some resolved, some not. Each appointment reminds me that you could find yourself back in the hospital at any moment, for any number of reasons. I can't help but worry that this honeymoon period may soon be coming to an end.
These nearly six months of having you at home have been more than I could have ever hoped for. We lead a life unlike most families we know, but ultimately one I wouldn't trade for anything. You, exactly as you are, make my life meaningful. You bring joy to others that I could have never imagined. You inspire others to do better - be better. Despite everything you've endured, you still radiate joy. It's unbelievable. I get so angry that you're sick. I wish that I could heal you. I hate so much that we have no idea how much time we'll get with you, but Aberdeen, I am so thankful for you.
Earlier today I was trying to pinpoint my favorite memory, my favorite day with you so far. Focusing on the things that are amazing about this life helps to keep my mind off of my fear of what the future holds. Honestly, I think just sitting with you on my lap, making goofy faces back and forth at each other is maybe the best thing in the whole world. Your sweet little face cracking up into a giant smile is truly magical. I could watch you laugh forever. I love that when I pick you up, you grab onto me and hold tight. You know that I will fight to keep you safe with every fiber of my being. I cherish just being your mommy. The simple day-to-day giggles and snuggles are my absolute favorite moments.
Thank you for being so strong. Thank you for your sass and your fighting spirit. Thank you for your smiles and joy through everything. Thank you for keeping me grounded and challenging me daily. I love you, my beautiful girl - my baby bird.