Before we leave, there are still a few things that have to be taken care of. They'll do another echocardiogram to make sure everything is copacetic, and we'll figure out follow-up plans with cardiology, genetics, and neurosurgery (we did a CT scan earlier this week that showed fusion of the sagittal and right coronal sutures). We'll pick up Abby's prescriptions and get a tutorial on how to draw-up and administer them. Home-care should be meeting us back at the house to get the feeding pump set up, and will probably check back in with us regularly to make sure things are going smoothly.
Home life will still be a little atypical for us. We'll probably be back weekly for monitoring, though we may be able to do some appointments at Dayton Children's. We've now been trained on how to use the feeding tube and pump, with the understanding that Abby will probably continue to need it until well after surgery. Though we're obviously thrilled for our little girl to leave the hospital, we're also a little trepidatious about leaving the wonderful nursing staff and having to figure stuff out on our own. Luckily, we know that we have God and an amazing network of people looking out for us. We can do this!