Tuesday, August 12, 2014
I'll explain more later, but basically since the second Abby was born, her craniosynostosis (and everything else we'd already been concerned about) was put on the back-burner because of a much more serious heart issue we were totally unprepared for - hypertrophic cardiomyopathy. Basically, the muscles of her heart are too thick and the passages are too narrow, so it's working extra hard all the time and causes excess fluid to back up into her lungs. She's doing better than she initially was, but she's being transferred from the MVH NICU to the Cardiac Intensive Care Unit at Cincinnati Children's Hospital. It is not something that can be surgically corrected (the MVH cardiologist described it as being "out of our control"), so they're hoping the specialty team in Cincy has a better idea of how to manage it. I was discharged today and we're following her down there. We're on day-to-day status right now and appreciate your continued prayers.