After Thursday's event, we were simply exhausted. Every time something new pops up for Abby, it drains us. There were already enough things for her to contend with, and having to watch her have to go through something additional, and support her through it, zaps us of our energy. Today, I am very upset. I just don't understand why such a sweet, helpless, completely inoffensive person should have to go through what she's going through. Please do not quote scripture to me on this point, it is not comforting, and does not bring me to some epiphanous place where my child's suffering suddenly makes perfect sense. Maybe someday, it will become clear. Maybe someday, I'll understand with a patient, thankful heart. Right now though, I'm lost somewhere between devastated and furious. I just want her to not have to struggle through every single day. I want that for all of these kids here. I just don't get it.
Sunday, January 4, 2015
21 Weeks Old
Abby had another seizure this morning. None of her seizures have been the grand mal type you typically picture. Rather, they're localized to a small section of her body - Thursday, it was her face and hand; today, her feet. Neurology was able to come by and see it happening and confirmed what it was. Naturally, she made it through her 36 hours of EEG with no problems, was discharged from the CICU, and THEN had another one. Usually they don't allow patients having seizures to stay in the step-down unit, but since her vitals are stable, they're having her stay for now.